Wednesday, August 27, 2014

Lushy Time of Year

Our neighborhood lotus pond is in full regalia with its platter-sized iridescent leaves waving and balancing on slender stalks, the prayerful and buttery pink flowers dancing in their midst. I always think about how mucky and ominous the pool looks in spring, and appreciate the transformation from something not very pretty to something "half wild & wholly tame" (with apologies to Kipling), something anticipated and awesome.

buttery pink flowers dancing in their midst
I can say the same thing about the growth around my ovaries. Ominous when determined to show cancer, but the awesome news we were hoping for arrived today, my pathology report came back
Stage 1. This is fabulous news in so many ways and entirely rare in the world of ovarian cancer.

And here the back story unfolds. Due to strong family history of breast cancer, I decided in 2007 to test for the BRCA gene. My results were negative. I breathed a small sigh of relief and kept up my state of the art detection approaches and uber-healthy lifestyle. With the breast cancer diagnosis in January, I was asked to get tested. I quickly reported my previous-not-that-long-ago negative finding and was told much more is known now; I should retest. Lo and behold I do carry the gene for BRCA.

All I can say is PROFOUNDLY BAD TIMING ON MY PART. I was being as proactive as I could be. Had I tested positive in ’07, I would have had prophylactic removal of my breasts and ovaries.  And how frustrating that one of the largest cancer research centers in the world would not be scouring its database and harnessing digital technology to alert patients who tested negative in the late 1990s and up through the 2000s, to RETEST. I have been in touch with my team there, you betcha, and will educate & write more on this topic going forward.

Not one to dwell on the frustrating side of life, I went to work on what else could I do to help prevent further issue. Which is why I was in a bit of a rush to have my ovaries out. And a good thing I advocated for myself and pushed this along. Most of my docs thought waiting until late fall would be ideal, give myself a chance to catch my breath from the onslaught that defines conventional cancer care. So the surgery I had last week, which was supposed to be entirely preventive, did not turn out that way, but to find ovarian cancer early is huge. Stage one is excellent. In some ways that breast cancer may well have saved my life.

So, what do you do when you are supposed to be recuperating from TAH/BSO (that's medicalese for total abdominal hysterectomy-bilateral salpingo-oophorectomy, or simply put: removal of the precious uterus, fallopian tubes and ovaries!) while simultaneously staring down the barrel at 6 rounds of chemo-yum yum? 

Here's my Top Ten List:

1. Clean the bathroom cupboards! Of course!
2. Work with patients a few hours at a pop, in person or by Skype, offers both deep satisfaction and helpful distraction. Keep on sharpening this mind.
3. Rework the yoga postures so my sutures don’t burst.
4. Create kick ass Powerpoints (a contradiction in terms), while lying on the couch, for a number of lectures I am to give this fall. 
5. Experiment with eyeliner (verdict: makeup makes me look like a tramp.)
6. Weed the flower boxes and commence the (annual) lament on the state of the fall garden.
7. Take slow walks by myself or with whoever will have me, build my endurance and speed right back up.
8. Listen to books on tape while daydreaming as I force myself to rest up (currently: Major Pettigrew’s Last Stand, a terrific read, even-keeled and lovely.) while lying in my chaise lounge in the shade.
9. Slip into my art room and send out birthday greetings, wedding wishes, and the ever increasing pile of condolences cards.
10. Stare at my basket of scarves and have the stunning realization that this fall I will be starring in a new show: The Reluctant Return of the Babushke Babe!
I will write again in a week or so, in response to all the replies I got about wanting to fast with me during my chemo-nation tour this fall. You guys rock! Know that I feel 100% myself, spirits high, happy at home, enjoying my family, my friends, my work and my ultimate good fortune this lushy time of year. 

Love & light,

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